Filmed last night, Tues, 06/09/09. I wanted to show the whole truth of living with connective tissue disease and as a statistic of the health care crises – This is me now, one and a half years after my muscles paralyzed on me. This is my life 80 to 90 percent of the time… My poor family! They’re such troopers! The purpose of this vid is because when my daughter did my hair and make-up in my previous vids and the fact that I was feeling so so good that day i felt it didn’t tell the WHOLE story of what it’s like to be sick in America today. There will be follow vids as well of doc appts, and other unpleasant things as time goes on in order to document the difficulty and frustration there is when trying to receive medical care.

Leave a Reply